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Showing posts from May, 2019

This just got real...

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So today I packed my bag.  I am lingering in a twilight of horrible waiting.  My anxiety level is pretty high.  As of Friday, insurance denied approval for a bone marrow transplant.  Apparently I'm not sick enough.  At least not yet.  Without a transplant, my doctor tells me I  probably won't live to see my youngest grandchild start kindergarten.  With it, I could die anyway.  Or have multiple organ failure.  Or develop a terrible thing called GVD, which stands for Graft vs. Host disease.  I'm the Host.  The Graft is what is supposed to keep me alive. This is big scary stuff.  I won't quote statistics.  They aren't pleasant.  And they don't really matter, unless you are a statistic.  So I am concentrating on thinking that THIS will heal me.  THIS will be a long haul, but it will be worth it.  THIS is what I am supposed to do. I am surrounded by a huge tribe of people who provide me with support....